LATARBELAKANG
Dalam dekade terakhir ini diketahui jumlah anak penderita autism bertambah dan merupakan salah satu bentuk gangguan perilaku yang cukup sering ditemukan, baik di masyarakat maupun di dalam praktek dokter anak sehari-hari. Kondisi tersebut menjadi kekhawatiran yang cukup serius di kalangan orang tua karena masih kurangnya pemahaman mengenai segala sesuatu tentang autism itu sendiri. Selain itu orang tua juga masih menemukan kendala untuk mendapatkan informasi yang kompetensinya dapat dipertanggungjawabkan. Tidak jarang, tenaga medis profesional yang ditemui oleh orang tua masih tertukar-tukar antara kasus autism dengan kasus-kasus lain yang menyerupai autism sehingga mereka tidak terlalu yakin dengan diagnosis yang dibuatnya atau tidak terlalu yakin dengan berbagai terapi yang harus diberikan kepada anak autism tersebut (baik itu terapi prilaku maupun farmakoterapi). Padahal tepatnya diagnosis sangat mempengaruhi tepatnya intervensi yang diberikan, dan tentu saja mempengaruhi masa depan anak tersebut kelak.
Sudah banyak pula berdiri tempat terapi yang menyatakan dapat menangani anak autis. Walaupun demikian, masih banyak anak yang tidak mendapatkan penanganan yang semestinya karena berbagai kendala. Untuk itu diperlukan kerjasama dari berbagai kalangan termasuk orang tua, psikolog, guru, pendidik, terapis dan juga medis profesional untuk dapat memberikan yang terbaik untuk anak autis, baik pada masa kanak, remaja sampai ke masa dewasa kelak nantinya.
Dalam kesempatan ini kami akan mengadakan sebuah talkshow yang akan diberikan informasi mengenai fakta ilmiah terkini mengenai autism dan segala sesuatu yang berhubungan dengannya, termasuk penemuan terkini yang mengusung teori neurotransmitter serotonin sebagai pemeran utama dalam terjadinya autism, dimana hal ini membuat farmakoterapi menjadi lini utama dalam pengobatan kasus autism. Juga akan dibahas mengenai permasalahan yang akan dihadapi pada masa remaja hingga dewasa dan bagaimana mempersiapkannya.
Rangkaian acara ini diharapkan dapat meningkatkan pemahaman para orang tua, psikolog, guru, pendidik, terapis dan juga medis professional mengenai segala sesuatu yang berhubungan dengan autism, bagaimana cara penanganannya dan strategi tata laksananya yang mutakhir. Akhirnya, akan didapatkan persamaan persepsi di semua komponen masyarakat sehingga kelak penanganan kasus autism di masyarakat menjadi lebih baik lagi.
TUJUAN
Membangkitkan kesadaran masyarakat khususnya orang tua, terapis/ guru, psikolog, dokter, mengenai apa segala sesuatu yang berhubungan kasus autism, dan kasus lain yang berada dalam kategori Pervasive Developmental Disorder
Memperkenalkan strategi tata laksana yang tepat terkini bagi kasus-kasus autism sejak masa anak, remaja sampai dewasa
Menjadi wadah komunikasi yang akan terus terjalin bagi Kementerian Pendidikan Nasional, Kementerian Kesehatan, guru, sekolah, orang tua, dokter, psikolog, pedagog, terapis dan pihak lain yang peduli pada kasus autism
KONSER AMAL untuk Ervitha
Ervitha adalah seorang remaja dengan autis yang saat ini sedang berjuang melawan penyakit kanker ganas payudara. Ervitha mempunyai bakat khusus yaitu bermain drum dan bernyanyi dan bergabung dengan bebebarapa anak autis lainnya dalam sebuah band yang dinamakan I’m Star. Kecintaan Ervitha akan musik membuatnya seorang pribadi autis yang sangat spesial dan ketika mendapatkan diagnosis kanker ganas payudara Ervitha selama beberapa lama harus meninggalkan kecintaannya terhadap musik. Konser amal ini diadakan untuk membangkitkan semangat Ervitha untuk terus berjuang melawan penyakitnya dan juga untuk memberikan sumbangan dana bagi pengobatan kankernya yang tidak sedikit (Ervitha harus menjalani beberapa kali operasi dan kemoterapi selama minimal 5 tahun).
Konser amal ini rencananya akan diisi oleh:
I’m Star Band (band yang digawangi oleh 4 individu autis remaja termasuk Ervitha)
Forum Musik Bandung
Band The Glory (Daniel dan kawan-kawan)
Performance dari anak-anak disleksia
Rhino dan kawan-kawan (individu autis yang juga berbakat di bidang musik)
Biodata of the I’M Star Band
Identity of Personnel :
Andhityas Cintya Widianna (Shinta)
Place and Date of Birth:Surabaya, 2 October 1997Education:Grade XI High School (2 SMA) SMM-YMJ (Musical High School – Jakarta Musical Foundation [YayasanMusik Jakarta])Current Activities:School, band practices, and special lessons in musical instrumentsMusical instruments played:Keyboard, Piano, Acoustic Guitar (classic), Electric bass guitar, Violin, Viola, and DrumsHobby:Playing and listening to music; watching cartoons, football matches and news reports on TV, reading the newspapers and playing video games on the Playstation, primarily DDR and racing games
AriandaWiradipaPrabowo (Arya)
Place and Date of Birth:Jakarta, 17 November 1994Education:Jakarta State Polytechnic [PoliteknikNegeri Jakarta] - University of Indonesia, DepokCurrent Activities:College, band practice, lessons on various musical instruments, and going to the gymMusical instruments played:Keyboard, Piano, Drum, Saxophone and role as a Vocalist (vocals)Hobby:Cycling, Karaoke, Listening to Music,Shopping for food, Socializing,Culinary adventures and going to the gym
ErvithaPuspa Dhewi (Ervitha)
Place and Date of Birth:Jakarta, 6 October 1992Education:graduated from D-1 PGTKI (Preschool Teacher’s Academy of Indonesia) [Pendidikan Guru Taman Kanak-kanak Indonesia]Current Activities:Teaching, assistant therapist at Wilakertia (workshop and teaching institute for children with special needs), band practice and musical lessonsMusical instruments played:Drum, Keyboardas well as vocalsHobby:playing music, singing, and browsing the internet
Made Dwara Abhysma (Abhy)
Place and Date of Birth:Jakarta, 30 January 1995Education:State Polytechnic of Jakarta [PoliteknikNegeri Jakarta]–University of Indonesia, DepokCurrent Activities:College, band practice, and lessons in various musical instrumentsMusical instruments played:Keyboard, Piano, Bass Guitar, Drums, SaxophoneHobby:Browsing the internet, playing computer games, listening to music, taking trips and eating
THE FORMATION OF THE I’M STAR BAND
The I’M STAR BAND was initially conceived when one of the members’ parents was challenged to form a teenage band whose member comprised of children with special needs. The band is intended to perform in the upcoming anniversary of the World Autism Day in 2012 by the YIPABK Foundation and CAE (College of Allied Educators) which hosted the event at the time. On 9th of April 2012 the IM STAR band was formed. After the practice sessions, the group debut their musical performance on the beginning of May 2012.
Their first performance was a huge success which made the parents eager to continue this band together. The parents of Abhy, Arya, Ervita and Shinta saw that their kids really enjoyed playing music together. Even though it is said that autistics live in a world of their own and tend to be anti-social, it turns out that music could bring them together. It is one of the primary reasons why this band is maintained.
Through the introduction with several doctors who are experts in the field of autism, the IM STAR Band was introduced to movie director Damien Dematra. After holding a short observation on the members of the band, Damien decided that he wanted to help and create a movie which was aimed to increase the awareness of autism to the public so that they would better understand and accept the conditions of those who suffer from autism.
The movie’s was title ‘I’M STAR’ same as the name of the kid’s band. The plot revolved around the issues regarding inclusive education in Indonesia and how many teenagers with special needs are struggling to adapt and blend into a society which has little to no clue of their conditions as many still find it difficult to accept their existence.
The I’M STAR Band has told their story and socialized their movie in various modes and media including several television shows such as:
Metro TV (the Kick Andy show, with the theme “Asa nan Penuh Onak”)
TVRI (a public awareness advertisement which promotes the issue of Autism Awareness, featured during the break periods of April 2012)
SCTV (Behind the Scene, shown during the LiputanPagi session, special edition for Ied’lFitr)
SCTV (participation of I’M STARduring theInternational Film Festival atBlitzmegaplex Grand Indonesia)
Trans 7 (a feature on nutrition and dietary needs for children with special needs)
B-Channel (on the show‘LangkahKecilku’)
B-Channel (on the show‘Ngopi/NgobrolPagi’)
B-Channel (on the show‘Sang Juara’)
TV One (on the show ‘Apa Kabar Indonesia Akhir Pekan’)
Net TV (in a feature for the show‘Net-17’)
Aside from television coverage, there are various media featuring I’M STAR including:
Radio D-FM (103,3 FM) Jakarta (7th February 2013)
Radio U-FM (Femina Group) (98,4 FM) (20th July 2013)
Pikiran Rakyat Newspaper, Bandung (February 2013)
Media Indonesia Newspaper, 24th February 2013 edition
Gatra Magazine no. 35/XIX, 4th-10th July 2013 edition
Gadis Magazine no. 14th edition, 21st – 30th May 2013
LIVE PERFORMANCES :
The group was founded on 9th April 2012 and has performed in several events including:
Performed at Cilandak Town Square during the Road Safety Day which was held by tire producers Michellin and Metro Jaya Regional Police [Polda Metro Jaya] -(21st June 2014)
Performed at a seminar held by the Savings Guarantee Foundation (LPS – LembagaPenjaminSimpanan) on an event to commemorate World Autism Day 2014 with the title “Autistics, Will they ever be able to Work?” [PenyandangAutis, MungkinkahBekerja?] ) (30th April 2014)
Performed at the Presidential Palace, in the event to commemorate World Autism Day 2014 in front of the First Lady (16th April 2014)
Performed in front of the Mayor of Bandar Lampung and his administration during the opening of PKBM – PusatKegiatanBelajarMengajar “Mata Hati” [Center for Teaching and Learning), Lampung(15th December 2013).
Performed in front of the representatives of various school grades from Primary, Secondary, High Schools and Vocational Schools as well as the general public in Metro – Lampung during a public viewing of the movie “I’M Star” (13th December 2013).
Opening performance band for the Declaration of DKI Jakarta as a City that supports Inclusive Education – opened and officialized by the Governor of DKI Jakarta at Ancol Beach City Mall -(23rd November 2013)
One of the supporting acts during the musical concert of the Second "What Will I Be" event at Kuningan Tower [MenaraKuningan]–(5th October 2013)
One of the supporting acts of the event AUTISMAZE, atEpiwalk Mall - Epicentrum, Jakarta(28th-30th September 2013)
One of the supporting acts at the “UNTHINKABLE WEEK” during the Asia Pacific Economic Cooperation Forum (APEC) atKuta - Bali (3rd – 4th October 2013)
Special Performance during the commemoration of National Children’s Day in front of the Minister of Women and Children’s Empowerment, Mrs. Linda AmaliasariGumelarat Pacific Place – SCBD, Jakarta(26th July 2013)
One of the supporting acts during the Thisable Festivalat Plaza FX – Jakarta (30th June 2013)
Jam Session during the event BATAVIA JAZZ – (1 of 5 bandswhich is a supporting act)atGandaria City(28th June 2013)
Supporting act suring the 50th Anniversar of the National Museum of Jakarta / The Elephant Museum – Jakarta (30th May 2013) which was attended by the Vice Minister of Tourism and Creative Economies
Autism Awarenesswhich was held by LSPR (The London School of Public Relations) (5th April 2013)
Live performance at every event during the initial screening of the I’M STAR movie at LSPR (London School of Public Relation), SMMK (Modern Kawai School of Music) Pondok Indah, STAN (State Academy of Accountancy [SekolahTinggiAkuntansi Negara]), YAM (Independent Children’s Foundation [YayasanAnakMandiri]) Serang, HSKS (Home Schooling of KakSeto), and in front of 10 thousand teachers in the DKI Jakarta priovince at the SMESCO Building. (March-May 2013)
National Coordination Meeting of the Ministry of Health which was attended by the madam Minister of Health, IbuNafsiahMboy, at BhirawaRoom, Bidakara Hotel(18th March 2013)
During the Declaration of Metro Lampung City as a Centre for Inclusive Education which was officialized by the Mayor of Metro Lampung and his administration at Metro - Lampung. (26th December 2012)
The Seminar of “Human Rights and Protection of Children with Special Needs” with guest speaker renowned artisan MerdekaSirait and the Holden Kids of UKI (Indonesian Christian University [Universitas Kristen Indonesia], Cawang Jakarta (9th November 2012)
Invitation from the Ambassador of Malaysia for ASEAN Region to the IM Star Band at his ambassador’s estate, as a sign of appreciation and honor for I’M STAR’s performance in the opening ceremony bazaar of AWC [ASEAN Women’s Circle] (6th November 2012).
Opening ceremony during theGRAND BAZAAR of AWC - ASEAN Women’s Circleatthe ASEAN Building, Jakarta (2nd November 2012)
IFF (International Film Festival) at Blitz Megaplex, Grand Indonesia, Jakarta (30th August 2012)
The musical concert “Closing Ceremony Spare 08” at FKM-UI, Depok(14th July 2
012),
Gramedia bookfair & Expowhich was held by PT Gramedia at Bintaro Plaza (22nd June 2012)
The musical concert of “What I Will Be” which was held by the CAE – College of Allied EducatorsatKuningan Tower, Jakarta(5th May 2012)
Web/Facebook : www.imstarband.com
Youtube Chanel : IM Star Band1 @ Indonesia State Palace, Picture taken by Madam Ani Yudoyono
1
2 With Mrs Ani Yudhoyono, @ Indonesia State Palace
3 Perform @ ASEAN Women Circle Gathering
4 With Ibu Linda Gumelar, Ministry of women empowerment and childern protection ( International Children Days)
5 With Kick Andy's Host - Andy F Noya ( Metro TV)
6 @ London School of Publick Reletion, Autism Awareness day
7 Metro TV Kick Andy Shoe
BENTUK, TEMPAT DAN SUSUNAN ACARA
Talkshow AUTISM “Masa Anak, Remaja, dan Dewasa”
Di Mall GIANT PASTEUR , Bandung
Hari Minggu, 30 November 2014
Pembicara
Nara Sumber: dr. Purboyo Solek, SpA(K)
Topik: Autism: Masa Anak, Remaja, dan Dewasa
Target Peserta
Masyarakat umum, pemangku kebijakan dalam layanan pendidikan, orang tua, guru, terapis, psikolog, dokter umum, dokter anak, psikiater, praktisi pendidikan, penyelenggara layanan pendidikan , penyelenggara layanan senter terapi
INFORMASI
Indigrow Child Development Center
Pak Zaenal : 081322963735
Ibu Indri : 08179915281
kristiantinidewi@gmail.com
